Why We Walk – Amarli’s Story and the Power of Rare Disease Awareness

Every step we take is for Amarli. 

Every dollar raised is a message: you are not alone.

At just seven years old, Amarli Broome is facing a journey most of us can’t imagine.

Diagnosed with a rare genetic disorder linked to the GRIK2 gene, Amarli’s condition affects brain development, communication, and motor skills.

It’s a diagnosis so rare, doctors and researchers around the world are still learning how best to support children like her.

This is why we walk.

We walk to raise awareness for CureGRIN Foundation, a global research initiative bringing families, scientists, and supporters together to find answers. We walk to support early intervention therapies and raise vital funds for Amarli’s ongoing care.

Most of all, we walk to rally our community—to show what love, unity, and hope can do.

As part of this year’s Trek for Amarli, we’re proud to bring together families, local businesses, and everyday heroes across the Illawarra who believe in a better future for kids with rare diseases.

Whether you join the trek, donate, or simply cheer from the sidelines—you are part of Amarli’s Army.

Let’s walk forward. Together.

🔗 Learn more about CureGRIN: www.curegrin.org 📅 Join the Trek – August 24 🎟️ Grab a raffle ticket or donate here: https://www.amarliarmy.org/