Some support means even more because it keeps coming back. As we prepare for Trek for Amarli on Saturday 17 October, we’re incredibly grateful to welcome back three businesses that have stood behind Amarli Army for a third year. Southern Cross Civil & Rail Training, Unique Kids Clinic & Parklands Fire Protection Each of these businesses have supported Amarli Army before, and once again they’ve chosen to be part of what we’re building. That ongoing support means a lot to our f

On 17 October, we walk for Amarli. Join us for the 2026 Trek for Amarli. 👉 amarliarmy.org #AmarliArmy #TrekForAmarli #NeverNeverNeverGiveUp #Illawarra #Community

Our incredible community has stepped up again, donating an amazing array of prizes, products and experiences to support Amarli Army. One of the major prizes will be an E-Bike generously supplied by B & D Garage Doors & Illawarra E-Bikes There will also be restaurant experiences, accommodation, family adventures, jewellery, homewares, toys, gift packs and plenty more up for grabs. A huge thank you to the wonderful businesses and supporters who have contributed:- Illawarra E-B

One of the greatest things about Australia is the way our communities come together when someone needs a hand. Behind Amarli Army are families, friends, volunteers, supporters and local businesses who choose to stand beside us. Our sponsors do far more than place their name on a cause. They donate time, resources and support. They open doors, bring people together and help us continue making a difference. You see this same community spirit in towns and cities right across Aus

We are incredibly proud to welcome B&D Garage Doors Wollongong, Illawarra E-Bikes and CBC as new Amarli Army sponsors for 2026. Their support helps us continue raising awareness and vital funds for rare disease research, while standing beside Amarli and other families facing the challenges of rare disease. Community support like this is what keeps the Amarli Army moving forward. Every sponsor who joins us helps make our events possible and brings us another step closer to a b

The countdown is well and truly on. In just six weeks, the Amarli Army will come together once again for Trek for Amarli 2026 on Saturday 17 October. This is more than just a walk. It is a chance to stand beside Amarli, her family, and everyone living with a rare disease. It is about raising awareness, bringing people together and helping drive the research that can lead to new treatments and, one day, cures. THE TREK IS FREE - BUT YOU MUST REGISTER There is no cost to take p

A huge thank you to Emily, Josh and the whole crew at The Commune Functional Training for putting on such an amazing Trivia Night for the Amarli Army on Saturday night. It was a brilliant night, full of laughs, great people and a wonderful sense of community. Most importantly, the night raised a significant amount of money that will go towards research into finding a cure for Amarli’s rare GRIK2 condition. For our family, that means more than we can put into words. Events lik

The Trek may be FREE to join, but we still need everyone who plans to walk with us on Saturday 17 October to officially register. Why register if it’s free ? Because it helps us properly plan for numbers, organise the day and make sure we’re ready to welcome everyone joining Amarli’s Army. Every registration also shows the incredible strength of the community standing behind Amarli and other children and families living with rare genetic conditions. 👉 REGISTER FOR TREK 2026

They’ve organised a special Trivia Night to support Amarli Army fundraising, and we’re incredibly grateful for the effort they’re putting in to help Amarli and our cause. 📍 The Commune Functional Fitness33 Hamilton Street, Dapto📅 Saturday 29 August🚪 Doors open from 3pm🎉 Raffles & Trivia from 6pm It should be a fantastic night — plenty of laughs, raffles, trivia and a great community coming together for Amarli. 💗 If you’re around Dapto, we’d love to see you there! Thank y

After a difficult week last week, including a hospital visit for a fractured leg, we’re very pleased to share that Amarli has had a good week at home recovering. She’s been resting, spending time with her family and, in true Amarli fashion, continuing to show us just how strong and determined she is. We’re hopeful her recovery keeps heading in the right direction. Weeks like this remind us why the community surrounding Amarli means so much. Amarli Army has always been about p

This photo was taken this afternoon. Sadly, Amarli has fractured her leg again, her second fracture. Amarli is non weight bearing. As result she is at high risk of fractures due to osteoporosis amongst her other co-morbidities. It is another reminder that the effects of Amarli’s rare condition extend far beyond the seizures and challenges people may immediately see. Yet through every hospital admission, procedure and setback, she continues to show extraordinary courage. For m

How Your Support Helps Kids like Amarli For families living with a rare GRI disorder, research represents something incredibly powerful: hope. Hope for a greater understanding of these complex conditions.Hope for better treatments.And ultimately, hope for a cure. The CureGRIN Foundation is working to turn that hope into progress by bringing families, scientists, clinicians, pharmaceutical companies and advocates together. Here are five important ways CureGRIN is helping move

Last year we walked together. This year we're walking towards a cure. Trek for Amarli returns on Saturday 17 October 2026, and we'd love you to be part of it. Whether you walk the entire trek, join us for part of the journey, or simply come along to show your support, every step matters. Registration is FREE. 👉 Register here: https://www.eventbookings.com/b/event/trek-for-amarli-2026 Together, we can make Trek for Amarli 2026 our biggest walk yet. 💜 Every Step Matters.

Small wins are still big wins 💜 After a torrid few months, our beautiful Amarli is finally back home. She had returned to Wollongong Hospital from Sydney Children’s Hospital, made it back home for a few weeks, then had to head back into Wollongong Hospital again to fight off another virus. It has been a tough stretch for our little warrior, but Amarli continues to show us what courage looks like. She is now back home and continuing her brave battle to gain more mobility. It

For the past several weeks, our beautiful Amarli has been fighting for her life once again. After being admitted to hospital with severe respiratory complications, Amarli was intubated and transferred to Sydney Children’s Hospital before returning to Wollongong Hospital. She is recovering on antibiotics after being extubated and needs her family and carers by her side as she looks to get back home sometime in the near future. As many know, Amarli lives with extremely high car

Amarli’s 8th Birthday. This year, she enjoyed a beautiful Unicorn Party surrounded by family and a few of her wonderful carers and their kids — and it was magic in every sense of the word. A huge thank you to Adorable Pony Parties and Hannah for bringing along Mac the pony (our very own unicorn for the day). Mac was so gentle and patient with Amarli — it meant the world to see her light up. 🎄 A small but special win over Christmas Over the Christmas break, Amarli was also ab

Amarli & her family celebrated xmas 2025 at home with close friends & carers, What a year 2025 was with many highlights featured here in her latest Instagram post - https://www.instagram.com/p/DS7L7HUE-5M/?hl=en Unfortunately after a challenging day after xmas when her oxygen levels dropped, Amarli was ambulanced to Wollongong Hospital with sirens blaring. She is still in Kids ward and thankfully stable with on-going treatment & tests. Huge thanks to all the awesome staff &

Come along, join the fun and hear some great local music @ Wollongong UNIBAR. Amali Dimond, Satin Cali & mystery headliner Act. https://www.instagram.com/stories/broome.amarli/3769937311174979954/?utm_source=ig_story_item_share&igsh=MW5xc3Q3ZmFjM2pubQ%3D%3D Tickets - MOSHTIX

What. A. Day. Yesterday the Illawarra showed exactly what community, heart, and purpose look like and the Amarli Army could not be prouder. With our Lead Truck rolling proudly at the front of Convoy 2025 , powered by a record-breaking $305,000 bid , we hit the road representing every supporter, donor, family member, partner, sponsor and friend who helped make this moment possible. And honestly…it felt electric. The Energy From the moment we lined the road at Warrawong to the

We can’t reveal the name just yet (contractual stuff 🤐), but here’s what we can say… Our Concert for Convoy headliner are ARIA-charting topping surf-rock legends currently on a huge national tour — and they’ve generously agreed to play our show in support of the Illawarra Community Foundation . 🌊🎸 They’ll be joining Amali Dimond and Satin Cali for a night packed with music, community and purpose. There are No Bad Days when you're playing for a great cause in Our Parad