After a difficult week last week, including a hospital visit for a fractured leg, we’re very pleased to share that Amarli has had a good week at home recovering. She’s been resting, spending time with her family and, in true Amarli fashion, continuing to show us just how strong and determined she is. We’re hopeful her recovery keeps heading in the right direction. Weeks like this remind us why the community surrounding Amarli means so much. Amarli Army has always been about p

This photo was taken this afternoon. Sadly, Amarli has fractured her leg again, her second fracture. Amarli is non weight bearing. As result she is at high risk of fractures due to osteoporosis amongst her other co-morbidities. It is another reminder that the effects of Amarli’s rare condition extend far beyond the seizures and challenges people may immediately see. Yet through every hospital admission, procedure and setback, she continues to show extraordinary courage. For m

How Your Support Helps Kids like Amarli For families living with a rare GRI disorder, research represents something incredibly powerful: hope. Hope for a greater understanding of these complex conditions.Hope for better treatments.And ultimately, hope for a cure. The CureGRIN Foundation is working to turn that hope into progress by bringing families, scientists, clinicians, pharmaceutical companies and advocates together. Here are five important ways CureGRIN is helping move

Last year we walked together. This year we're walking towards a cure. Trek for Amarli returns on Saturday 17 October 2026, and we'd love you to be part of it. Whether you walk the entire trek, join us for part of the journey, or simply come along to show your support, every step matters. Registration is FREE. 👉 Register here: https://www.eventbookings.com/b/event/trek-for-amarli-2026 Together, we can make Trek for Amarli 2026 our biggest walk yet. 💜 Every Step Matters.

Small wins are still big wins 💜 After a torrid few months, our beautiful Amarli is finally back home. She had returned to Wollongong Hospital from Sydney Children’s Hospital, made it back home for a few weeks, then had to head back into Wollongong Hospital again to fight off another virus. It has been a tough stretch for our little warrior, but Amarli continues to show us what courage looks like. She is now back home and continuing her brave battle to gain more mobility. It

For the past several weeks, our beautiful Amarli has been fighting for her life once again. After being admitted to hospital with severe respiratory complications, Amarli was intubated and transferred to Sydney Children’s Hospital before returning to Wollongong Hospital. She is recovering on antibiotics after being extubated and needs her family and carers by her side as she looks to get back home sometime in the near future. As many know, Amarli lives with extremely high car

Amarli’s 8th Birthday. This year, she enjoyed a beautiful Unicorn Party surrounded by family and a few of her wonderful carers and their kids — and it was magic in every sense of the word. A huge thank you to Adorable Pony Parties and Hannah for bringing along Mac the pony (our very own unicorn for the day). Mac was so gentle and patient with Amarli — it meant the world to see her light up. 🎄 A small but special win over Christmas Over the Christmas break, Amarli was also ab

Amarli & her family celebrated xmas 2025 at home with close friends & carers, What a year 2025 was with many highlights featured here in her latest Instagram post - https://www.instagram.com/p/DS7L7HUE-5M/?hl=en Unfortunately after a challenging day after xmas when her oxygen levels dropped, Amarli was ambulanced to Wollongong Hospital with sirens blaring. She is still in Kids ward and thankfully stable with on-going treatment & tests. Huge thanks to all the awesome staff &

Come along, join the fun and hear some great local music @ Wollongong UNIBAR. Amali Dimond, Satin Cali & mystery headliner Act. https://www.instagram.com/stories/broome.amarli/3769937311174979954/?utm_source=ig_story_item_share&igsh=MW5xc3Q3ZmFjM2pubQ%3D%3D Tickets - MOSHTIX

What. A. Day. Yesterday the Illawarra showed exactly what community, heart, and purpose look like and the Amarli Army could not be prouder. With our Lead Truck rolling proudly at the front of Convoy 2025 , powered by a record-breaking $305,000 bid , we hit the road representing every supporter, donor, family member, partner, sponsor and friend who helped make this moment possible. And honestly…it felt electric. The Energy From the moment we lined the road at Warrawong to the

We can’t reveal the name just yet (contractual stuff 🤐), but here’s what we can say… Our Concert for Convoy headliner are ARIA-charting topping surf-rock legends currently on a huge national tour — and they’ve generously agreed to play our show in support of the Illawarra Community Foundation . 🌊🎸 They’ll be joining Amali Dimond and Satin Cali for a night packed with music, community and purpose. There are No Bad Days when you're playing for a great cause in Our Parad

Picture above: Amarli's little brother Jordi giving her banner a big kiss @ Ross Transpor t Today will go down as one of the greatest moments in Amarli Army history. With an incredible final bid of $305,000 , WE DID IT — Ross Transport & the Amarli Army have officially secured the Lead Truck for the 2025 i98FM Illawarra Convoy . This didn’t happen because of one person. It happened because of an entire community that believes in something bigger — love, courage, purpose,

🤫 We can’t say who (just yet)… but our mystery headliner are ARIA-charting surf rock legends 🌊🎸 currently tearing up a national tour ! They’ll join Amali Dimond and Satin Cali for Concert for Convoy — a massive night of feel-good live music supporting the Illawarra Community Foundation 💛 Big vibes. Big hearts. Big secrets. 🎟️ Tickets are flying — only 34 Pesos !.....don’t miss out ! 👉 [ MOSHTIX ]

We’re thrilled to announce that Satin Cali have officially joined the lineup for our upcoming Concert for Convoy at UOW Unibar on Friday 21 November ! 💛 These Wollongong favourites have been lighting up stages across the country with their powerful blend of surf-rock and grunge-driven energy — and now they’re bringing it all home to support the Illawarra Community Foundation . They’ll be joining Australian Idol star Amali Dimond and a massive mystery surf rock headliner

Local rising star Amali Dimond first won hearts across Australia as a standout finalist on Australian Idol 2023 . With a powerful voice, magnetic stage presence, and a sound that blends pop, soul, and coastal cool, Amali has quickly become one of the Illawarra’s most exciting young performers. From national TV to packed live shows, her performances radiate authenticity and joy. Now she’s bringing that same energy to support a cause close to home. Don’t miss Amali "live" at t

The Amarli Army is thrilled to announce our Concert for Convoy – coming to the UOW Unibar on Friday 21st November ! We’re beyond excited to share that an ARIA “chart-topping” surf rock band , currently on their national tour , will be headlining our event ! While we can’t reveal their name just yet due to contractual obligations, we can promise this will be an epic night of live music and community spirit. Supporting them will be an incredible local talent, Australian Idol

Even from her hospital bed, she knows how to make us all laugh and smile. This is what our Trek is all about - walking for brighter days...

Thank you to everyone who walked, supported, donated and cheered us on. Together we’re making a difference. Special thanks to Kevin...

In the lead-up to last weekend’s Trek, Amarli faced a tough challenge of her own. Last Monday she was admitted to Wollongong Hospital and...

On Sunday, our Amarli Army family came together for the Trek for Amarli , and what an incredible day it was ! From start to finish, the...